URGENT ACTION NEEDED PLEASE on The BLS Petition for a national strategy for Lymphodema in England - "Save the NHS £100, for every £1 spent on lymphoedema treatments"

Jane Durston, Operations Manager at The British Lymphology Society has surveyed BLS member views on Lymphoedema Awareness Week 2015 and has created the petition "Save the NHS £100, for every £1 spent on lymphoedema treatments". As Corporate Members of BLS, PhysioPod UK Limited have added their names to the petition and would really appreciate the support of others in adding their name too.


  • We need a strategy for Lymphoedema in England and to do this, we need to get this discussed in Parliament. Please give this your urgent attention, sign the petition today. Thank you, Mary Fickling, Director, PhysioPod UK Limited

  • The British Lymphology Society has been writing to NHS England at regular intervals for over a year to try and address these matters - to date they have received no response. Lymphoedema could happen to any one of us and common sense should guide NHS England policy - conservative treatment and prevention is not only preferable to; but cheaper than, the present state of affairs.

  • The petition will be present to Dame Barbara Hakin, National Director - Commissioning Development, NHS England. Please lend your support at https://you.38degrees.org.uk/petitions/save-the-nhs-100-for-every-1-spent-on-lymphoedema-treatments

  • Why isn't there a National strategy for lymphoedema services in England? Please support the petition at https://you.38degrees.org.uk/petitions/save-the-nhs-100-for-every-1-spent-on-lymphoedema-treatments

  • National strategies for lymphoedema services have already been established in Wales (NCAT 2013)

  • National strategies for lymphoedema services have already been established in Wales (NCAT 2013)

  • National strategies for lymphoedema services have already been established in Northern Ireland (NCAT 2013)

  • The Lymphoedema Support Network (LSN) has also produced an award-winning GP training module on lymphoedema.

urgent

31st JULY 2015 - URGENT Update from Jane Durston of BLS


"Thank you for all your efforts to date - But BLS really need to increase the numbers of people signing this petition; either online or on paper. We are at approximately 4000 signatures and it is vital we must push this up to at least 10,000 by 1st September 2015 in order to have a serious impact. Please can everyone sign regardless of their location - we want to ensure UK-WIDE strategies. Here is the link again which you can copy and paste: https://you.38degrees.org.uk/petitions/save-the-nhs-100-for-every-1-spent-on-lymphoedema-treatments. Please add this to your own facebook pages and tweet if you can! Attached is a printable petition form. Please print these out and try to collect signatures from whom-ever you can, including patients, colleagues, friends and family. You can then either post or scan and email these in to be added to the total. Many thanks indeed! Jane"

 

The campaign is very important to Jane Durston and the more support behind it, the better chance there is of succeeding.

You can read more and SIGN the petition here and you can also read more below from Jane Durston:

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https://you.38degrees.org.uk/petitions/save-the-nhs-100-for-every-1-spent-on-lymphoedema-treatments


To: Dame Barbara Hakin, National Director - Commissioning Development, NHS England

 

Save the NHS £100 - for every £1 spent on lymphoedema treatments

Campaign created by The British Lymphology Society Jane Durston

 

Develop a lymphoedema strategy for England

 

Why is this important?


Lymphoedema is a long-term condition defined as tissue swelling due to a failure of lymphatic drainage.  It can affect any part of the body.  (NCAT 2013)  An estimated 240,000 men, women and children in the UK have lymphoedema, many of whom remain undiagnosed and untreated (LSN 2014). With an ageing population and increasing obesity, this figure is set to rise.

Money is currently being wasted treating the symptoms of unmanaged lymphoedema (NCAT 2013).

For every £1.00 spent on lymphoedema treatments that limit swelling and prevent damage and infection, the NHS saves an estimated £100 in reduced hospital admissions.  (NCAT 2013)

National strategies for lymphoedema services have already been established in Wales, Northern Ireland and Scotland.  (NCAT 2013)

There is no national tariff available for lymphoedema - although the British Lymphology Society have published a National Lymphoedema Tariff Advisory Document which sets out proposals for achieving this. (BLS 2014). 

Once treated and controlled; lymphoedema can be self-managed with the right support and within a good clinical infrastructure.  (NCAT 2013)

There are no minimal educational standards for lymphoedema practitioners, although the International Lymphoedema Framework project sets out a skills framework.  The British Lymphology Society has also published a document setting out "Population Needs assessment and professional roles in the care of lymphoedema" (BLS 2014) and a "Treatment Pathway for Lymphoedema Patients with a Body Mass Index (BMI) equal or great than 40kg/m2".

The Lymphoedema Support Network (LSN) has also produced an award-winning GP training module on lymphoedema.

75% of lymphoedema is non-cancer related and 25% is cancer related, therefore it cuts across specialities.  (NCAT 2013).

Cellulitis is an acute spreading inflammation of the skin and subcutaneous tissues characterised by pain, warmth, swelling and erythema.  (BLS/LSN 2014).
Admissions to hospital with cellulitis, the most common complication of lymphoedema, are a significant burden on local health care services.  The cost of hospital admissions for cellulitis in Derbyshire, Nottinghamshire and Lincolnshire was approx £4.1m in one year (population of 2.5 million). (NCAT 2013). 

The British Lymphology Society has been writing to NHS England at regular intervals for over a year to try and address these matters - to date they have received no response.  Lymphoedema could happen to any one of us and common sense should guide NHS England policy - conservative treatment and prevention is not only preferable to; but cheaper than, the present state of affairs.