Lymphoedema Awareness Week and World Lymphoedema Day 2021

Lymphoedema Awareness Week (#LAW2021) in the UK is 1st – 6th March 2021 and on the 6th of March 2021 it is World Lymphoedema Day (#WLD2021). 

"Whilst many patients and patient advocates before us have worked extremely hard to raise the profile of Lymphoedema there has been a concerted effort over the last 5 years with many groups choosing to work together.

In late 2019, I was invited to join The European Patient Advocacy Group (EPA) as a Patient Representative, an association I am immensely proud to be a small part of.  This led to the first joint Manifesto of European Patient Associations in March 2020 with a call to action to raise the profile of Lymphoedema in the UK and Europe.  The unexpected turn of events of 2020 as the world turned to dealing with Covid-19, meant our campaign fell flat.

However I am proud to say the EPA is thriving and this year more countries have been added to the manifesto there are now more patient associations involved.  In the UK I am proud to say L-W-O Community is involved, as is our friends at Lymphoedema Support Network.

In an ideal world, if patients, patient advocates, patient associations and Lymphoedema organisations could work together we would raise the profile of Lymphoedema improve the quality of care for Lymphoedema patients and educate the public and clinicians, the latter who have little knowledge of the lymphatic system because it is not covered in great detail in medical school.

One of the most wonderful aspects of running L-W-O Community, are the amazing people I meet, whether that person is one of our members or one of the many professional people in our community. One lovely person I became acquainted with in 2017 via Twitter is Mary Fickling Co Director of PhysioPod UK.  Mary has been a big supporter of ours, sharing our posts, sometimes offering advice, and becoming a valued friend. We met first in 2018 and had fun at the MLD Conference in 2019.  

I have written several guest Blogs for the PhysioPod website and in addition, I have started writing for the monthly PhysioPod Newsmagazine.  In our many conversations we started talking about this year’s campaign for LAW and WLD and how we could work together.  We started working in January and decided we would make our joint campaign visual.  I sent Mary a slide presentation I did for use in the Community and she said, “hmm too long for a video, I can make seven videos out of your presentation”.  To date Mary has made 14 videos using my words and writing.  I am absolutely thrilled with the results and although my poster/video skills are improving, I could never have achieved the results that Mary has.  She has put countless hours into our joint video presentations, they have deliberately been made short and will be released on a daily basis from the 1st March 2021.  Mary, Julie, and I, sincerely hope they will give anyone who watches them a greater understanding of what Lymphoedema is and what it is like for those of us who live with Lymphoedema."

About Gaynor Leech, Founder of LWO Community

 

LWO Community & PhysioPod UK - Co-ordinated Activity

 

"SIX DAYS - SIX NEWSLETTERS"

WITH HELPFUL LYMPHOEDEMA VIDEOS, ARTICLES, SUPPORT MESSAGES,

LINKS, APPS, RADIO & ZOOM INTERVIEWS, TESTIMONIALS

AND MUCH MORE....

 

 

EACH LINK WILL BECOME LIVE

AT 8.30AM EVERY MORNING

OR GET THE NEWSLETTER IN YOUR INBOX BY ADDING YOUR FIRST AND LAST NAME AND EMAIL TO OUR SUBSCRIBERS

 

READ NEWSLETTER > DAY ONE - 1st March 2021

READ NEWSLETTER > DAY TWO - 2nd March 2021

READ NEWSLETTER > DAY THREE - 3rd March 2021

READ NEWSLETTER > DAY FOUR - 4th March 2021

READ NEWSLETTER > DAY FIVE - 5th March 2021

READ NEWSLETTER > DAY SIX - WORLD LYMPHOEDEMA DAY - 6th March 2021