Video Coverage of The 1st International Symposium on Lipoedema, New York, April 2015

It’s an exciting time for Lipoedema (Lipedema) Research, the 1st International Symposium on Lipoedema brought together top medical researchers, surgeons and medical professionals from around the world to come together to support finding a cure for this often misunderstood (and misdiagnosed) disease. Sharie Fetzer, Chair of Lipoedema UK and Catherine Seo of The Lipoedema Project, have kindly provided their feedback of the event with an exciting announcement that Lipoedema UK will be partnering the Lipedema Project in 2016 to bring the 2nd International Forum to London.

Video Coverage with thanks to LIVE STREAM.

From Sharie Fetzer, Chair of Lipoedema UK:

The 1st International Symposium on Lipoedema held in New York on Friday 17th & Saturday 18th April brought together Professor Etelka Foldi from the Foldi Clinic in Germany, Dr Mark Smith and Dr Bill Ripicci of the Friedman Center for Lymphoedema Research & Treatment, NY, Dr Stanley Rockson of Stamford University, Dr Karen Herbst, many experts from the field of Lipoedema & Lymphoedema plus researchers from the US and Europe and premiered Catherine Seo’s wonderful video ‘The Disease they call Fat’.  

Day 2 was split into 2 separate events: a Think Tank attended by medical experts and researchers and a Solutions Forum for patients and their supporters.  Christine Wise, represented St George’s Hospital in the Think Tank and Sharie Fetzer of Lipoedema UK co-chaired the Solutions Forum.  

Nurse Consultant, Denise Hardy gave a presentation on behalf of UK Allied Health Care Professionals on Bandaging, Compression, MLD and CDT.  Lipoedema UK will be partnering the Lipedema Project to bring the 2nd International Forum to London in 2016.

From Catherine Seo of The Lipedema Project:

One of the key benefits resulting from the Symposium is the exchange and rapport between healthcare professionals and the lipedema lady population as well as the connections and interchanges amongst attendees at all levels.

Annemarie Craigen-Denher, an attendee, captured the spirit of collaboration that arose, "I have so much more knowledge about lipedema now - both as a therapist and a "lippy-lady".... I can honestly say that going into the symposium I felt alone and like the "different" one (I am the only one of 6 sisters who has lipedema)  Coming out of the forum on Saturday, I feel that I can go forward, get properly diagnosed and become part of the research community that will help to find a solution."

The most meaningful interactions invited all to become a part of the solution building.

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To read more about the Lipedema Project please click here

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