Fundraising Update for Lymphaletics 2014 - a sports day for Children with Lymphoedema

£1200 now in the pot from fundraising efforts and donations towards the target of £12000

Gareth Dixon, Fitness Coach at David Lloyd Nottingham, Mary Fickling, Director at PhysioPod UK Limited and Marie Todd, Lymphoedema Nurse Specialist have completed their current challenges to raise funds towards the National Children's Lymphaletics Day, 13th September 2014 at The Ponds Forge International Sports Centre in Sheffield.


  • Sept 29th: Gareth did amazingly well to complete a full marathon in less than four hours! He will also help at Lymphaletics 2014

  • Relieved it's all over and ready for the celebratory drinks afterwards at David Lloyd Nottingham.

  • Sept 29th: En route, the smashing Pink Cheerleaders supporting runners..

  • Septh 29th: Ikano Marathon runners nearing the finish line..

  • Oct 6th: A week later! What a superb day for a half marathon on Rollerblades!

  • Oct 6th: Oblivious to the crazy blader alongside him, fisherman settles in for a nice quiet day by the Trent!

  • Mary started the skate wearing her CLSIG sweat top but had to discard on Lap 3 because of the sweltering 18 degrees!

  • Little Brother David joined Mary for half of the half marathon, greatly entertaining her along the way!

  • David, Mary and another great supporter of CLSIG, Peter-John Kenney at Victoria Enbankment Oct 6th 2013. Pictured at the end of the skate, time for a welcome pint at The Riverside..

  • Marie and Gordon Todd completed the Glasgow 10K run

  • Fraser Todd completed the Glasgow 10K run

  • Buster Todd completed the Glasgow 10K run

Read on Press Release Point 15.10.2013

Gareth

Gareth Dixon Fitness Coach at

David Lloyd Nottingham

Completed the Ikano Full Marathon: Time 3.47

 

mary oct 6th

Mary Fickling, Director  at

PhysioPod™ UK Ltd completed a Half Marathon

on Rollerblades

On Sunday 6th October 2013 

at Victoria Embankment Nottingham

Time 1.58


marie

Marie Todd

Lymphoedema Nurse Specialist


Glasgow Specialist Lymphoedema Clinic


Completed the Glasgow 10K


Time 1.32



IN AID OF

lymphaletics

To Be Held on 13th September 2014 at

 Ponds Forge International Sports Centre

 Ponds Ford

EFFORTS ARE ONGOING TO RAISE £10800

 

GoFundMe

EasyFundraising

 

For more information read below

lsn logoclsig

This note came to PhysioPod™ UK Ltd in July 2013

From Denise Hardy 

on Behalf of the CLSIG

The Children’s Lymphoedema Special Interest Group, (CLSIG) are a volunteer group of Lymphoedema Specialists who work closely with the Lymphoedema Support Network (LSN) to promote lymphoedema services and support for children with this condition.

The members are all health care professionals who are directly involved in treating children of this kind. As well as providing direct care and support, they also want to promote awareness of the condition, promote the provision of effective services and ensure that patients and families of children with the condition are provided with the help and information that they need.

Until recently services have only been available for adults, however there are now some clinics around the country that specifically provide treatment for children.  

Lymphoedema is an incurable condition that can cause swelling of any part of the body and can be very disfiguring. It is not life limiting but children often find that they cannot join in with sports or competitive activities because of their swollen limb. It is a relatively rare condition so children are unlikely to meet others who have the same problems. The mainstay of treatment is to wear compression garments to the affected arms or legs but this often causes embarrassment, name-calling or loss of confidence – it’s hard enough being a teenager without the added difficulties of lymphoedema! It is becoming apparent that there could be many more children who suffer from this but who do not get referred. 

This means that by the time they reach young adulthood they are already have complications that are irreversible. 

CLSIG want to provide a special day for children and families with lymphoedema so that they can meet each other and share activities that are fun and in which they will have a chance to win. Exercise and sport helps control this condition considerably but CLSIG need to promote this to children and their families, and build up their confidence, in an environment where they can get together with other children who are having the same issues. CLSIG aim to strengthen their coping and adaptation strategies. 

CLSIG wish to seek wider promotion for the day to raise awareness among the public about the condition and in this way help more people to find out they can get treatment.

Can you help?

It is hoped that for the second National ‘Lymphaletics Day’ next year on 13th September 2014 that around 100 families from around the UK are to join in a fun day of sport and activities in Sheffield, in a supportive environment to promote confidence, quality of life, exercise and facilitate peer support on a national basis.

 

Ponds Forge

The Ponds Forge International Sports Centre in Sheffield is booked for 13th September 2014 and now CLSIG have the mammoth task of ensuring that they can finance it. They want to be able to provide this day free of charge to children and their families, and overnight accommodation for those travelling greater distances. CLSIG have the dedication, passion and enthusiasm to make sure this project is a great success for the children but with your support, involvement and financial assistance we can realise this dream! We aim to provide various ‘sporting’ activities that children of all abilities can take part in, and also provide rewards for all those taking part to bring a sense of achievement no matter what their limitations.

We will also be doing an educational session – we want families to learn as much as they can from the professionals available (and from each other) and we hope to have a keynote speaker on the day. This educational session will hopefully be supported with an exhibition of lymphoedema products/equipment that we use to treat the condition.

Children and their families will be able to see just what products are available, which will give them more choice and opportunities to discuss the options open to them at this time.

This whole day is about teamwork and achievement! We really want this to be a fun day for the children and their families, but also want to raise these children’s expectations of what they can achieve and build up their confidence in joining in sports and team activities. Lymphoedema management for children in the UK is greatly under resourced to date and by raising awareness of the condition will help to make sure that all children who have this condition access appropriate treatment. 

I hope that you will be able to help us in our goal in supporting children with lymphoedema, and that our request for support is considered.

Contact Denise Hardy for more information

 

Please support the Lymphaletics cause at:

 

GoFundMe

EasyFundraising